NASHIA: Washington Weekly Update






NASHIA Plans 2012
SOS Meeting

Amy Flaherty,
Conference Chair

Planning continues
for our annual conference; you won’t want to miss this dynamic event! The 2012
meeting will be held in conjunction with the 28th Home and Community-Based Services (HCBS)
sponsored by the National Association of
States United for Aging and Disabilities (NASUAD), which showcases promising
practices in long-term services and supports. This year’s conference will be
held September 10 -13 at the Hyatt
Regency Crystal City
in Arlington, Virginia.

Day 1 (Sept. 10)
will focus on TBI topics only, both plenary and workshops, as well as the NASHIA
membership meeting. Topics will include Public Policy, Return to Learn and
Innovative Uses of Technology in TBI Recovery. Sept. 11-13 will include
workshops and plenary sessions on federal programs and home and community-based
services, including sessions on TBI, aging, developmental disabilities,
substance abuse and mental health.

The conference fee
will cover all days (Sept. 10-13) and
registration is now
The early bird
registration fee is $525 for government and non-profit entities, $750 for
corporate entities. Early bird registration closes August 3, 2012. Hope to see
you there! Register now by clicking the link:


Again this year
NASHIA will be holding a silent auction and raffle. We would welcome your
donation! If you are interested in donating an item please contact Carol Hansen



Judy Dettmer,
Committee Chair

It is an exciting
time to be a member of NASHIA. With your membership, you will have access to
your peers and national leaders throughout the country to help you in both your
current role and your professional growth. Equally important is your access to
representation of state government through the organization’s collective
interest with regard to policies impacting brain injury services and funding.

It has never been
a more important time to join NASHIA. This year the TBI Act is up for
reauthorization. NASHIA, along with other partners, are working extremely hard
to ensure that this critical legislation is passed. NASHIA is the only
organization dedicated to ensuring the voices of states are heard regarding
brain injury. NASHIA is the premier source of information and education for
State Agency employees and stakeholders responsible for public policies,
programs, and services affecting individuals with brain injury and their

You can support
NASHIA in the following ways:

  1. Become a
  2. If you are a member, recruit three
    of your state public and private partners to join!
  3. Take a more active role in NASHIA
    by joining a sub-committee!

Thank you for all
that you do to improve the lives of individuals with brain injury and for your
support and commitment to NASHIA. Together we will have an
For membership
information please visit our website.



Public Policy

Bill Ditto &
Susan Vaughn

While staff and
committee continue to pursue TBI Act reauthorization and funding, NASHIA also
supports other issues affecting TBI, and is a member of several coalitions to
work towards that end. The American Brain Coalition (ABC) supports overall
brain research and was key in the recent House Resolution commending the
Administration for supporting the Office of Science and Technology Policy
Interagency Working Group to coordinate federal investments in neuroscience
research. The resolution lists all of the organizations comprising the ABC,
including NASHIA, that support coordinated research.

ABC has also been
instrumental in working on behalf of the “One Mind for Research: A Ten Year
International Campaign for Brain Disease Cure” initiated by former Rep. Patrick
Kennedy. The One Mind for Research’s plan is to work smarter and share
resources through public and private partnerships in order to make more progress
on every brain disorder from schizophrenia to TBI. Retired US Army General
Peter Chiarelli is Chief Executive Officer, and along with Rep. Kennedy,
appeared on the Today show in March to discuss One Mind. PricewaterhouseCoopers
is currently working on an incidence and prevalence study, and ABC will help
provide publications and methodology.

Rebeccah Wolfkiel
attends meetings and briefings hosted by ABC, Congressional Neuroscience Caucus
and One Mind on behalf of NASHIA. The Congressional Neuroscience Caucus made its
inaugural meeting last June and is holding a briefing again June 13, 2012. The
Caucus also collaborates with the Congressional Brain Injury Task Force on TBI



Updates From
Our Partners



Association of States United for Aging and Disabilities

A. Roherty, Executive Director

On April
16, 2012 the Administration announced its decision to launch a new
Administration for Community Living (ACL) within the U.S. Department of Health
and Human Services (HHS). The Administration on Aging, the Office on
Disability, and the Administration on Developmental Disabilities will join
together to form this a new HHS agency, which will pursue improved opportunities
for older Americans and people with disabilities to enjoy the fullest inclusion
in the life of our nation.

this announcement, National Association of States United for Aging and
Disabilities (NASUAD) Executive Director Martha Roherty said “By formalizing
partnerships between federal aging and disability agencies, the Administration
is taking a critical step forward in its efforts to protect and advance the
rights and needs of all Americans, regardless of age or ability. As an
Association, we commend the creation of the Administration for Community Living,
and we look forward to working with our partners in the aging and disability
communities to support this new agency.”

Under the
new structure, the Assistant Secretary for Aging will simultaneously serve as
the Administrator for the U.S. Administration for Community Living. This
position will be supported by the Principal Deputy Administrator, who will
continue to advise the HHS Secretary directly on disability policy. The
Administration on Aging (AoA) and the Administration on Intellectual and
Developmental Disabilities (AIDD), two operating divisions within the new
agency, will report directly to the Administrator, as will the Center for
Disability and Aging Policy (CDAP) and the Center for Management and Budget

Speaking to
parallel state efforts to strengthen the provision of long-term services and
supports, NASUAD President and Director of the Oklahoma Aging Services Division,
Lance Robertson, said “Notably, these structural changes within HHS largely
mirror the transformation that has been taking place at the state level over the
past several years, as the role of state agencies has expanded to include the
administration of programs that serve both older adults and individuals with

Since 2009,
nearly half of all NASUAD member states have either restructured their agencies,
or developed plans to do so, in part to internally absorb the losses ushered in
by a lingering economic downturn. In 2010, the Association’s membership voted to
change its name to reflect these state-level realignments. Currently, 76 percent
of NASUAD members administer programs or operate Medicaid waivers that serve
both populations.

Given the
synergy between state-led reorganization efforts and the Administration’s plan
to formalize the corresponding partnerships at the federal level, the
Administration for Community Living will facilitate the delivery of long-term
services and supports through a seamless, coordinated system that supports
population-crossing initiatives as well as those specific to the unique needs of

individual groups. NASUAD fully supports the Administration for Community
Living, and thanks the Obama Administration for its commitment to ensuring the
dignity and independence of older adults and individuals with disabilities in
whatever place they call home.

Press Release

on Community Living

Press Release

letter to Sebelius for decision to create the ACL:


Injury Association of America

Connors, Executive Director

Kusek, Director of Communications

successfully launched a new campaign for Brain Injury Awareness Month this past

Anywhere, Anyone, Brain Injuries Do Not

This same
theme will carry through for the next few years.

BIAA joined
NASHIA and the Congressional Brain Injury Task Force March 21 to celebrate Brain
Injury Awareness Day on Capitol Hill, which kicked off with the Brain Injury
Fair. Later that day, Reps. Bill Pascrell, Jr. (D-NJ) and Todd Platts (R-Pa.),
co-chairs of the Congressional Brain Injury Task Force, held a news conference
on the Traumatic Brain Injury (TBI) Act (H.R. 4238), followed by a briefing on;
“Traumatic Brain Injury, Anytime, Anyone, Any Age.” After the briefing, The
Brain Injury Association of America presented Rep. Platts with an award for his
service as co-chair of the Congressional Brain Injury Task Force since 2005.
Rep. Platts plans to retire at the end of this Congress after serving the 19th
district of Pennsylvania since

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2001. The day ended in celebration at a reception
hosted by Reps. Pascrell and Platts in the Rayburn House
Office Building.

Also in
March, the House Committee on Energy and Commerce’s Subcommittee on Health held
a hearing on “A Review of Efforts to Prevent and Treat Traumatic Brain Injury.”
Dr. Mark Ashley testified on behalf of the Brain Injury Association of America.
During March, staff and members of BIAA’s Business and Professional Council met
with several key agencies and organizations that will be involved in
implementing aspects of the Patient Protection and Affordable Care Act,

BIAA has a
number of webinars coming up, including: Resource Facilitation May 10; TBI in
Prisoners May 22; Use of Amantadine in Severe TBI June 11; and Get Things Done
& Have Some Fun with Smart Devices July 19. CEUs will be awarded for
participation. Go here for more information and to register:


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